Day 17

It's been a couple rough mornings here. Andy isn't hungry when he wakes up, and doesn't really want to eat until after his first nap.

He had a total of 25 spasms today. They were broken up into two distinct groups. He did well otherwise.

He did great with physical therapy. For the first time, he sucked on his toes. And looked around for me when I left the room. He has no trouble leaning forward and his torticollis is much better.

We made the decision to end his phenobarbital. He had none tonight. It was only a couple days early, and he has been down to the final 1ml daily.

I'm not sure if I believe he could become even more aware than he already is. He's figured out how to hold onto the buckle on his booster seat.

We had a very fun play date with other babies at the playground. Andy got his first baby kiss, and reached out for other babies. He was so sleepy, I'm excited for him to become less sleepy with more time so he can get the most from his play dates.